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CENTRUL NICUSOR PENTRU COPII SI TINERET ASOCIATIA DE SPRIJIN A COPIILOR CU DIZABILITATI “STEAUA CALAUZA”

A story of a girl with Klippel-Trenaunay-Weber syndrome

BY Natalia ModvalPosted on April 1, 2017May 17, 2024

https://suntparinte.md/project/povestea-fetitei-din-moldova-diagnosticate-cu-sindromul-klippel-trenaunay-weber/

Alexandra, a four-year-old girl who is the only child in Moldova diagnosed with Klippel-Trenaunay-Weber syndrome.

Doctors from Moscow diagnosed Alexandra with Klippel-Trenaunay-Weber syndrome. While doctors in Moldova did not give Alexandra any chance to live, Russian doctors encouraged her parents. At age 2 and 10 months, Alexandra started going to the “Nicusor” Center for Children and Youth in the village of Gratieti. Tat 3 years and 6 months she began to make the first steps. Thanks to the speech therapist, Alexandra started talking. More than a year after her first visit to the Nicusor Center, Alexandra became independent. At the center the little girl receives free kinesitherapy, music therapy and speech therapy.

 

 

 

 

The photos were made by Gabriel Encev.

Klippel-Trenaunay-Weber syndrome is a malformation of the venous system, characterized by lower limb varicose veins, increased volume (hypertrophy) of the affected areas and the appearance of cutaneous angioma.

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